Saturday, June 4, 2016

Saturday June 4

Woke up early to head in to clinic.  I slept ok last night.  I was having pain so I was up and down a lot.  

Mom took me in to clinic.   We stopped at Panera on the way in and I got a hot chocolate and a bagel.  We got in to clinic and they did my bloodwork right away. I fell asleep for a little bit.  We were the only ones there with one other patient so it was pretty quiet.  

The nurses checked on my bloodwork and said everything looked ok but we had to wait on the doctors to make their rounds.   It's Saturday so unfortunately they take their time.   The doctors showed up around 10.   We waited from 6:30 to 10.   But when they got there it was pretty good news.   They said that all my bloodwork was good.  I didn't need any supplements.   They want me to increase my prograf again because it was a little low but that's all the changes.  He even said I could have a break tomorrow and don't need to go in.  

I have to go back on Monday.   They told me it's probably going to be a long day.   There's a medication they need to give me but they are still trying to get insurance approval.   The medication is $12,000 for one dose and it's something that I need.  It's a potent medication that has a lot of side effects so there's a chance I could be admitted back in the hospital for monitoring.  So Monday could be a pretty interesting day.   We will see!!   Hopefully everything works out.  I'm sure it will.   Mom and I left the hospital and headed back to the apartment.  Mike and Linda met us at the apartment and hung out for a little bit.   They spent the morning at the Strip District shopping and then they went to the casino for a little bit.

They took us to lunch.   We went to Rock Bottom which is a local brewery so Mike could try out some of their microbrews.  I had a small chicken quesadilla for lunch.  It was pretty good.   Their food is ok there.  Nothing really stands out too much.   They serve such a variety and their menu is huge.   You can get anything from Mexican to burgers, Italian, club sandwiches and seafood.  We sat there and hung out for a while.   It was nice catching up and listening to their stories from when they were younger.

After lunch we came back to the apartment and had cake for dessert.   The delicious cake from Oakmont Bakery that Jimmy and his wife Sarah got me for my birthday.  Mike and Linda stayed a couple of hours and left around 2:30.   It was so nice of them to travel so far just to visit me.   It made me feel really good and special.

After they left we rented a movie.   We rented Joy.  It was a pretty good movie about a struggling young woman with a crazy family.  I would recommend watching it.  I don't know if it's something I would watch again but it wasn't bad.

After the movie I heated up some leftover pasta from Cheesecake Factory for dinner and had half an orange. I am exhausted from the day so I'm just going to chill out the rest of the evening until it's bedtime and then I'm going to put on my pjs and hopefully get some sleep.  My pain is a little better today so I'm hoping it doesn't act up before I go to bed or while I'm sleeping.  

All in all I've had a great weekend so far!!  I'm exhausted but I had a lot of fun!!  Tomorrow is a new day and I can sleep in!!!  I'm looking toward to it!   Have a good night tonight!   Sweet dreams!!! 

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