They started the meds around dinner. I had to be pre-medicated before the could give me the rotuxamap. They gave me Tylenol, Benadryl and a steroid. I'm ok with the Tylenol and Benadryl. I had never gotten the steroid they gave me before but it made me feel like I was on fire when they gave it to me. It was a very odd feeling. The heat feeling started low and creeped up through my body and into my face. Odd feeling.
About a half hour later an iv team nurse came in to start the medicine. They start it at a low rate and take vitals every half hour. I took it ok for the most part. At times it was nauseating, it also made me itchy and hot. The Benadryl helped a lot with that. It took a couple of hours for the medicine to finish. It was pretty potent but I think I handled it pretty well.
I was up most of the night getting meds, getting labs drawn along with feeling like crap. It was a pretty crappy night.
Today has just been a day of recovery. I am in a lot of pain. I'm really nauseous and have added pain in my right hip and leg from the biopsy yesterday. I'm having a hard time walking on it. I'm just going to rest today but wanted to make sure you had an update.
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As of now we do not have any additional information except the diagnosis. Hopefully tomorrow we will have some more biopsy results. I will keep you posted as we learn more. Have a good day!!! Hopefully I can get a nap in and get a little sleep. As always thank you for your support!! 😘
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