Sunday March 6

We got up early and I put a fluid on.   We put in a movie and watched The Room.   Definitely an interesting movie.  I would recommend watching it.  It was worth it.

After we watched the movie Colin was watching golf on tv and I fell asleep for about an hour.  When I woke up, I got dressed in my warm comfy clothes....long underwear and all and we went to play pitch and putt.  I was ok at the beginning but started to not feel well towards the end of the round.   We left and came home after our 9 rounds were done.   It was nice to get outside and get some fresh air.  It also gave Colin a little bit of golf time even though I'm terrible at it.   He didn't seem to mind.   He's a great teacher but I'm a horrible student!!!  

On our way home, I got a call from my dad that Honey was in the hospital.   My Uncle Rick found her laying on the floor when he stopped over for coffee and called 911.   They took her to the hospital, ran tests and determined that she had a heart attack.  My mom went to Altoona and is going to stay with her at the hospital.  There is fluid in her lungs which they are giving her medicine for and she has a lot of swelling in her legs and feet so they have her on something for that too.   She is slow in her speech and her breathing is shallow but for the most part she's alert.  We are just hoping that she's not in too much pain and she's comfortable.   She's not complaining at all but she never does.  Honey is 96 years old.   She has lived a very good, rewarding life.  We are all praying that God will take care of her and do what is best.   Please keep her in your prayers. 

We went home and I layed down.  We watched the golf tournament the rest of the afternoon.  For dinner we ran over to Red Robin.   We sat at the bar and watched the end of the tournament.  After it was over we went home, I put on my tpn and went to bed.  

Saturday March 5

Got up and went down to The Strip District for a walk. We got some produce at the produce stand for Colin's smoothies.  We went over to the Robinson Town Center Mall to do some more walking and so Colin could check out Golf Galaxy.  It was a pretty cool place.   Just a huge sporting goods store full of golf.   They had a Five Below which I was super excited about.  I got some new colored pencils, a new adult coloring book and a pencil sharpener.  

We got home and reserved some movies at the redbox. I ran to the grocery store to grab some more fruit that I didn't get at market.  I picked up the movies and came home.  We watched Extraction with Bruce Willis but I ended up falling asleep.  Colin said it was good.  

I just chilled out until it was time to put on my tpn.  I got everything together, put it on and layed down.  I had a terrible night.  I was up the entire night.  I think I may have slept two hours.  

Hopefully today will be better.   Have a good day!!

Friday March 4

Today was actually a pretty good day.  I slept a decent amount last night.  Got up and put on my fluids this morning.  

I have been doing research on essential oils.  I looked around here at target, ac moore, Michaels etc and couldn't find a diffuser or the oils anywhere.  I found them online at Walmart.com so I called the closest Walmart in Pittsburgh to see if they had them in the actual store and they do!!!  I made a small road trip and went to Walmart.  I was able to get the diffuser for $10!!!!  I was super excited about it.  And they had the oils for $2 a piece.  I got 4 different oils that are used to promote sleep.   I also got a new "adult" coloring book since I finished the one that Susie bought me.  Coloring is so relaxing for me.

After Walmart I stopped at the grocery store to get more bananas for Colin's smoothies because they are on sale right now for $.25 a pound.  I've been peeling and freezing them for his smoothies.  It gives them an ice cream like consistency.  I've been making him smoothies for breakfast this past week.  It's been kind of fun experimenting with them even though I can't eat them.

I got home and did some laundry and mopped the floors.  I was feeling pretty good today.  I didn't have much of a "fog" today.  I feel like I had a pretty good day.  I was alert and aware of everything going on around me.  

I heard something today that I want to share....an amazing friend of ours - Seth Goodhart is holding a concert in June as a fundraiser for my transplant!!   It's being held in June.   More details to come at a later date.  I will post more information when I have it.  The creativity, generosity, love and support of my friends and family through this difficult time has just been completely overwhelming.   

G

Kelly Schavnis is also hosting an event that I posted a couple of weeks ago.  It's a crafting event.  She has been working on it for weeks.   There still some time slots left if anyone wants to sign up.  I'll post the info again.   It's an awesome thing that she is hosting this fundraiser.   I'm so excited to see what the turnout is but I'm really sad that I won't be able to make it and physically be there. 

Colin got home and we started watching Fuller House on Netflix.  We watched a couple episodes.  Then we decided to go for a walk.  We went over to Dick's to look for sweatpants.  They are crazy expensive.  I know I'm cheap but spending $60-$70 on sweatpants / exercise pants is just insane to me!!!  I don't know why someone would pay that much.   It's insane!  We stopped at Target and they were $30 there.  I can't see paying that either.  I think that's expensive. 

We got home and I got my tpn ready and I'm laying down now.  I'm hoping to get some sleep tonight.   Have a good night!  Sweet dreams!!

Thursday March 3

I did not sleep at all....I am lucky if I got 2 hours total. Needless to say I "woke up" completely miserable.  

I put on a fluid early and got myself ready for the day.  Colin needed something from the store so I ran over there quick for him.  Then I had some errands to run.  I dropped off his stuff and ran to the post office, the dollar store, Michaels, the grocery store and to target to pick up my melatonin they ordered for me.  

I got home and started to not feel well.  By noon my fog started and just got worse as the day went on.  I was in it for the rest of the day until I went to bed.  I spent the afternoon/evening laying on the couch until about 7:30 when I got the energy to get up off the couch and put on my tpn.  I took my melatonin and went to bed.  I fell asleep around 10 or so and slept straight to about 2:30 this morning.  I was up a couple hours and then fell back asleep until 7.  I'm actually feeling well rested this morning so hopefully I'll have a good day :). I'll post more later!!!  Wish me luck!

Wednesday March 2

I'm a little behind on posting because I was pretty sick yesterday.  

Wednesday was pretty uneventful.  I cleaned and organized some more.  I guess you could say I'm in spring cleaning mode.  My kitchen cabinets are organized with bins now so it's easier to find things.  

I also did a couple loads of laundry.  I wasn't in a fog all day.  I actually had a really good day and was able to keep busy and keep moving.  I didn't sit down until after 4:00.  I made Ranch chicken for Colin for dinner. He sat down and ate.  

After dinner we just chilled out and watched tv.  I put on my tpn and went to bed.  

Tuesday March 1

Got up bright and early and went in to clinic.  They did the usual bloodwork, labs and gave me a bag of fluids.  

The doctors made their rounds and everything looks good on my labs.  My ammonia levels are a little high yet but they are going down.  They are making some adjustments to my tpn.  I'm still going into my fog by the afternoon which is scary at times.  

We stopped at target and dropped off my prescription.  Then stopped at redbox and got a couple movies.  We watched the Night Before. I ended up falling asleep and missed most of the movie.  I'll watch it today when Colin is working.  The other movie was Miss you already.  It was worth watching but I did cry at a couple points.

I made dinner and we just chilled out the rest of the evening.  Not sure what today will hold.  Have a good day!!

Monday February 29

Got up early and put on a fluid.  Took off my tpn, showered and got ready for the day.

Left the house around 9:30 and went to the dollar store.   After the dollar store I went to Dick's, the grocery store and then home.  I carried the groceries in and put them away.   I got a bunch of fruit and veggies to make smoothies for Colin so I cut and portioned things out so that when its time to make the smoothies everything is measured out and ready to go.  

It took about two hours.  I had gotten some bins at the dollar store to organize a couple things in the kitchen so I cleaned and organized the spice cabinet and the top of the refrigerator.  I am going to tackle the other cabinets tomorrow.  Gives me something to do and makes me feel like I'm accomplishing something.  

I was done around 2 so I put on a movie and layed on the couch.  I was able to take a quick nap for about an hour.   I was up and had to get my tpn ready around 4.  I had therapy at 5:30 and had to have my tpn on at 5:30 on Monday because we leave the house at 5:30 on Tuesday for clinic so I got everything ready and injected the bag with everything so that I could just hook it up and start it when I got to therapy so I wasn't running behind.  

I went to therapy and got home around 7:00 or so.  When I got home I put on my pajamas and went to bed.  I have clinic today so hopefully everything will go well.  I will update later.   Have a great day!