Sunday March 13

Was up at 4am.  I couldn't go back to sleep.  I stayed in bed until I heard Shawn and Courtney up.  They were up around 6:30.  I got up and took off my tpn.  I got showered and dressed.  They were packing up their stuff when I got out of the shower.  They got ready and left around 8. 

After they left I went to the grocery store and got everything for dinners this week.  I came home and started cleaning up.  I did a couple loads of laundry and overhauled the house.  I organized and cleaned up my closet.  I put away the new clothes my mom got me and organized my shoes.  

Today was the Crafters Hours Fundraiser that Kelly was hosting.  They had 3 classes and during two of them, they put me on FaceTime so I could see everyone there and what they were making.  It was really nice to be able to see everyone.   Thank you to everyone who attended to support me and for all your generous donations.   I wish I could have been there.  It looks like it was a lot of fun and the different pieces everyone made were beautiful!!!   A special thank you to Kelly Schavnis for hosting the event and to Rut and Karen for all their hard work!  You guys are amazing!!!

Colin got home around 3.  I was happy to see him.  We had been apart for most of the week.  I was pretty emotional when he got home.  I had a very emotional week between everything with Honey and missing home and my family this week.  I cried a couple of times because I'm homesick.  

I was laying on the couch and suddenly felt something wet.  My ostomy bag broke.   It was all over the pillows and all over me.  I ran to the bathroom and cleaned myself up.  I changed the bag and cleaned myself up.  I put on my pajamas and got ready for bed.  The bag just added to my emotional state.  

I put on my tpn around 8 and went to bed.  I'm laying here now hoping to fall asleep.  Wish me luck.  Goodnight!!  

Saturday March 12

We were up early today.  I was watching the news to see what was going on with the parade.  Turns out they were starting the parade a few blocks from the Strip District which is where we were going to go in the morning.  That put a complete wrench in our plans.

I went back online and looked for something to do.  We decided to go to the Carnegie Museum of Art.  It's in Oakland near the hospital.  

We got dressed and ready.  We stopped at IHOP for breakfast on the way.  We got to the museum with no problems and no traffic!!!

It was a really cool place.  They had amazing art and the dinosaur exhibit was dumbfounding!  We spent a couple of hours there.   

Andrew Carnegie funded these dinosaur exhibits because he was fascinated by them.  This is his personal collection which makes the exhibit that much more interesting.  It was a cool place and I would highly recommend it.

After the museum we went back to the house and I put on my fluids.  Shawn and Courtney went to grab something to eat and I layed down and watched tv.  They got back after about an hour and we just sat around and talked.  

It was about 3:30 when my fluids were done.  Shawn was tired so we decided to stay in and watch a movie.  We just hung out the rest of the evening and talked and watched tv.  They ordered takeout for dinner, came back and we watched a movie.  I put on my tpn and went to bed around 9.   Don't forget to change your clocks tonight!!!   Sweet dreams!

Friday March 11

Got up early.  Ran to the grocery store to grab a couple of things and get breakfast for my mom.  

Hung out with mom for the day.  We did a little more shopping.   

Met up with Shawn and Courtney.  They came to Pittsburgh for a visit.  We just hung out at the house for the evening.  We watched a movie, I put on my tpn and we went to bed.  Nothing too exciting.  We looked up a couple of things to do downtown to avoid the parade on Saturday.  We will see what we decide in the morning. 

Thursday March 10

Got up and left my Grandmas to go to Honeys and meet my mom.   We got packed up and left for Pittsburgh.  

The drive was nice and easy.   We got there by noon.  Colin left to go back to Lancaster.  Mom and I hung out at the apartment and then went shopping at the Waterfront.  

I got a pair of Tom's on clearance at Journeys for $20.  They were originally 79.00.   They are really cute!  I was excited about the purchase.   We also went to bath and body works and mom got me some "sleepy" type sprays and plug ins to see if they will help me sleep.  We stopped in a couple more stores then went to dinner.  we went to Red Robin (mom's favorite restaurant).   After dinner we rented a movie and chilled out for the evening.  

We went to bed around 9:30.  I fell asleep pretty easily because we had an eventful day.  

Wednesday March 9

I slept a little bit off and on.  

I got up and went to Walmart to get a cell phone charger because the charger I had stopped working and didn't charge my phone overnight.  

I left there and went to Honey's.  I spent the morning/afternoon at Honeys.  She had a lot of company off and on throughout the day between the nurses and therapists.  Family was coming in and out.  It was a little overwhelming but she enjoyed the company.  

I was there all day and most of the evening.  I didn't get back to Grandma's until after 8.  I put on my tpn and went to bed.  It was a long day and I was exhausted so I fell asleep pretty quickly.  I was up every 2 hours or so.  It was a little bit of a rough night but I did sleep a little.  

Today is a new day.  We will see what it brings.   

Tuesday March 8

Woke up extra early and went in to the hospital for clinic.  They did my labs and bloodwork and said everything looks good.  My ammonia levels are perfect.   They are very happy with how everything looks.

We were actually done with clinic by 10 and headed home.   While we were there I talked to the doctor about going to visit Honey in Altoona.  They ok'd everything so I talked to Colin and decided I was going to go and stay overnight to see Honey and to check on my mom and make sure she was ok.  

I left and drove to Altoona.   It's about an hour and a half drive.   I got there and went to the hospital where Honey was.  I walked in and surprised my mom.  I didn't tell anyone I was coming.  Honey looked really good.  She had a mild heart attack.   Has congestive heart failure.  The fluid in her lungs has cleared up and they have her scheduled for discharge.  

I went with my mom and aunt peg to run a couple of errands to prepare for Honey to get home.  We got back to the house and Honey had just gotten home and was sitting in her chair in the living room like nothing had happened.  

She looks good!  She has her wits about her.  

I stayed at my Grandma and Pap's.  They were very gracious and made a bedroom for me in the basement. I slept pretty good.

Monday March 7

Didn't sleep well again last night.  Was worrying about Honey.  Mom and I were texting at 1am.  She slept at the hospital last night and stayed by Honey's side.  

I got up around 6 and put my fluids on.  When they were done I got showered and dressed.  I ran to the grocery store to get stuff to make for dinner.  Then I ran to target to see if my prescription was called in and it wasn't yet.  I'll have to ask them for it at my appointment tomorrow.  

I got home and made chicken enchilada casserole and chipped steak noodle bake casserole.  It's enough to last for the week so I won't have to cook any more this week.  I was supposed to have therapy today but it got cancelled again.  I put my pjs on early and did laundry, cleaned up the house and went through my clothes and shoes to send my winter stuff to get ready for spring.  

I'm feeling like I accomplished a lot today.  I didn't sit down until around 3.  Colin came home and we watched tv for a little bit.  I got him dinner and we started watching Wild.  We've seen the movie already but it's pretty good so we watched it again.  Around 5:30 I got my tpn together and ready since we have to get up at 5 for my clinic appointment.  

I'm just hanging out laying in bed now.  Hopefully I'll get some sleep tonight.  I'm exhausted.  I will update after my appointment tomorrow.   Have a good night!! Sweet dreams!!