Tuesday April 19

Today was a little better with the pain.  I was so overloaded with pain meds yesterday that I think we may be catching up and getting ahead of the pain a little bit.  

The problem I had was the nausea.  I was super nauseous all day.  I think it's the pain patch kicking in but am not 100% sure.  

I went for three short walks.   We went outside at one point to get some fresh air.  It was really nice outside.   

Mom and Dad came for a short visit in the morning on their way home from Ohio.  It was a nice little visit.  Colin went home and cloroxed the house while they were here.  I'll try to stay on top of this more.   I just haven't been feeling well.  I will post more later.   Sorry about the slacking.  

Monday April 18

Went for another biopsy.   Everything looked great on the camera.   They found a tennis ball size pocket of fluid on my abdomen which is more than likely causing the pain in my abdomen.   They are going to keep me until it is under control.

They put me on a fentnlyol patch to see if it will help with the pain.  They also up' my oral medication as well.  They are hoping to get a good regimen down for when I get home so that we have pain control.  

It was a long day just trying to get/stay comfortable but I was able to make due.

Sunday April 17

Today was a very bad day.  I was in a lot of pain.   There is a lot of bruising coming out on the surface of my abdomen.  They are all post surgical and it's a minor setback but everything as far as the transplant goes is good.   

My biopsy was good and the bloodwork is all ok.  That was my day in a nutshell.   Not too much to report.  

Saturday April 16

Woke up and went for a walk.  Washed my hair and gave myself a sponge bath.  They sent up my breakfast tray while I was finishing up.

I sat in my chair and ate.  After my breakfast we walked.  I made one full loop, started a second and was in excruciating pain.  We took a shortcut and went back to the room.   We got back to the room and the doctors were there making their rounds.  

Dr. Cruz looked at my abdomen and made sure it wasn't distended etc.  he said he would set up a ct scan for Monday as well.  He also changed some more of my medicines to be taken orally.  And they changed my diet back to low fat again.

I ordered a soft pretzel for lunch and ate it but I wasn't too hungry.  Colin ran and grabbed lunch for himself and when he got back we attempted to walk again.  The pain got even worse.   We got back to the room and the pain was even worse.  We both layed down and took a little cat nap.  

I tried getting up and moving a little but it wasn't getting any better.  Colin had started laundry before coming to the hospital so he went home to finish up and to clean.  He has been a cleaning phanatic to make sure everything is germ free.  

I stayed in bed the rest of the evening.  I will post more today.   Have a good night!!  

Friday April 15

Last night was a little rough.  I was up and down a lot with my bladder and my pain was pretty bad.   The nurses were wonderful as always and did everything they could to help me keep my mind off of it.  

The doctors made their rounds today and changed a couple more of my meds to oral.  I'm not taking too many via iv anymore.   They also advanced my diet today to soft foods.  So I have more variety to choose from.  

I had all three meals again today.  Frosted Flakes and an English muffin for breakfast, a hot turkey sandwich with gravy and mashed potatoes for lunch and half of a personal sized pizza for dinner.  

I know it's hospital pizza but it was really good!!

It was such a gorgeous day today.   Colin and I went outside for a little bit again to enjoy the sunshine.   We came back inside and I was asked to be examined again by a first year medical student.  I agreed and she came in and asked my medical history and she did a general exam.  

I just chilled out the rest of the afternoon.   Colin left around dinner to head home.  He seemed pretty exhausted today.

I'm sitting here watching Say Yes To The Dress.  I'm hoping to get some sleep tonight.  I hope you can do the same.   Sweet dreams!!  Have a good night!!

Thursday April 14

Better late than never I guess.  I had a scope first thing Thursday morning and they did another biopsy.   Everything looked good on the scope.   We are just waiting for the biopsy results which won't come back until tomorrow at some point.

I was able to eat breakfast.  Frosted Flakes!!!  It was delicious!!   For lunch I ate a seashell noodles and had a little yogurt.    I wasn't too hungry so I didn't want to push it.   For dinner I had a chicken breast, cooked carrots and mashed potatoes.   It was amazing!  

So far I've been able to eat and haven't had any nausea or vomiting.  

It was such a beautiful day.   Colin and I walked to the little courtyard at the front of the building and sat outside for about a half hour.   We came back to the room and I colored while he watched a movie.   He went home and I got myself ready for bed.   That was my day in a nutshell.   I hope you had as good of a day as I did.  

❤️

Wednesday April 13

Today was a pretty good day!   Woke up early as usual.  I stayed in bed though because they had me hooked up to a bunch of medicines.  

I was given breakfast and ate broth, chocolate milk and tea.  The doctors made their rounds and everything looks good on my bloodwork.  They gave me some potassium because that was a little low.   They gave me soft foods today!!! 

Lunch consisted of green beans, baked turkey breast and mashed potatoes!!!   It was delicious!!! 

(I didn't eat the whole plate)

I went for a walk outside!!!   It was so nice to get some fresh air!!!

We came back from the walk and got hooked back up to my iv's and I took a small nap.  I got up and ordered dinner.  I had a soft pretzel and a fruit cup.  It was very satisfying!  I'm on a pretty strict fat content diet but at least I'm eating!  And so far no side effects from eating.  After dinner I colored a little.  I laid down chilled out watching the tv for the rest of the evening.  

Today is going to be nice so we will see if I can go out again.

Have a good day!!   I'll try my hardest to stop slacking.