Thursday July 14

Got my bloodwork done early.  The docs made their rounds before 7.   They said I needed calcium replacements but other than that everything looks good and I can go home.  

The calcium took until about 1.  Then we had to wait on discharge instructions.  We were there until about 3.  We headed home but stopped at the grocery store because we didn't have any food.  We headed home after the store and started dinner.  We had hamburgers, rice, vegetables and baked beans.  It was a pretty good dinner and it was quick and easy on the foreman.  After dinner, we watched tv, I took my meds and headed in to bed.  It was an ok night.  I was up off and on all night because I was in pain and couldn't get comfortable.  

Wednesday July 13

Today was a little better.  I actually got some sleep last night.  I slept for about 5 hours straight.  I was feeling pretty well rested this morning when I woke up.

I had Raisin Bran, fruit and yogurt for breakfast.  I also had a Starbucks hot chocolate.  After breakfast I took all my meds.   The doctors made their rounds.  They still didn't have the biopsy results back yet.  They said as long as they are good I can probably go home tomorrow.  They said they would let us know when the results are back.  

I got hooked up to some meds via iv.   I just watched tv while they were running.   They scheduled a med that I haven't had in a while that takes some time to do and they have to pre-medicate me and do my vitals every half hour while it's running.   They started it around 10.  I can't leave the floor while it's running so I was pretty much bed-ridden for 4 hours.   I heated up and ate my lunch around 12:30.  I just had leftover Stromboli from last night's dinner.  

I started to not feel well from the medicine they had me on.  I felt like I had a fever and had chills, sweats and aches.  They gave me Benadryl to see if it would help.  It helped a little but I still wasn't feeling well.  I just couldn't get comfortable.  I couldn't even nap.  

Bill came in around 2:30 with the biopsy results.  Everything looks good.  There is nothing to worry about.  He said I can go home tomorrow.  He went over the med changes and said he would be by in the morning to get all my discharge paperwork and everything together.   

After he came in, Colin went home.   He had some errands to run and wanted to vacuum and clean up the house again.  

While he was gone I read my magazines that came in the mail and I took a small walk to the cafeteria.   I ordered my dinner - I had noodles with butter and a small blueberry yogurt.  Nothing special.  I wanted to eat light for dinner since I had such a heavy lunch.  

After dinner I laid down and watched tv.   I still wasn't feeling any better but I needed to try and get my mind off it.  The nurse brought all my meds in around 8:30.  She also gave me another dose of Benadryl.  It helped a little.   Now I'm laying here exhausted but unable to fall asleep.  Hopefully I will fall asleep and get some rest.  I guess we will see.  I will let you know tomorrow.   Have a good night.

Tuesday July 12

Woke up early on an empty stomach because I have a scope and biopsy.  They came and got me pretty early around 8:30.   They did the scope and biopsy as well as an endoscopy.  It took about an hour.   I was in recovery for about a half hour and then I was taken back to my room. 

I was really tired afterward.   My friend Matt came in to visit.   He stayed for about an hour and then took Colin to lunch to get him out of the hospital for a little bit.  While they were at lunch I went outside and sat for a little bit in the sun to get out.   I came back to the room and laid down.  Colin and Matt came back and hung out for a little bit.   Then Matt left.   After

He left I took a nap.  I fell asleep for about two hours.  I ordered a late lunch and chilled out the rest of the evening.

I ordered Stromboli for dinner and had a small piece of it.   Afterwards I went to bed.  I slept ok last night.  I got a little more sleep than previous nights.  Today is a new day.   Hopefully we get the biopsy results and we can go home tomorrow.   Keeping my fingers crossed.

Have a good day.

Monday July 11

Started my day bright and early with a procedure to have my picc line replaced.   They came and got me around 7:30am.  It took about two hours and they brought me back to my room.  I ate my breakfast and layed down for a little bit.   Around 1 they came to get me

To do the Doppler scan of my arms and legs to determine if that's where the blood clot came from.

The doctor doing the Doppler found some superficial blood clots in my right arm around my picc line but said the heparin drip should dissolve them.  That's probably where the clot in my lung came from.

They brought me back to my room after the procedure and I waited for my echo cardio gram that was scheduled for 3:30.   They came and got me about 3:15.  The echo went ok.   There is a little fluid around my heart but nothing they are too concerned with.   She said it has been there for a while so they will just keep an eye on it.   After all the testing I was completely exhausted and in excruciating pain again.  Once I got back to my room I stayed in bed and didn't move.   I had a rough night so I just went to bed.

Sunday July 10

Still in excruciating pain today.  I can't get out of bed on my own.  I even need help going to the restroom which is only about ten steps from my bed.  I am not sleeping because I'm in too much pain and can't get comfortable.  I don't feel like the doctors are listening to me.   They basically have me on bed rest until they can send me for tests tomorrow because they don't know where the blood clot came from and they don't want to take any chances.  

I am in a foul mood and don't really want to talk to anyone or explain what's going on.   It's so frustrating because everything that has been going wrong had nothing to even do with the transplant.   Everything with the transplant is great.   It's the side effects of the different meds and just freak occurances.   

Monday is going to be a day full of testing but hopefully we will get some answers.

Have a good night.

Saturday July 9

So sorry for not updating.   It has been a rough couple of days.   Saturday we found out I was having trouble breathing because I have a pulmonary embolism in my lung (blood clot).  It is what was causing all the pain when I'm breathing.  

In the meantime, the nurse was giving me iv meds and I felt something funny in my neck.   I told her right away.   They sent me for an X-ray.   They came back and told me that my picc line inverted and was no longer in my vein.   They had to call the iv team to come in and try and place it so that we could use it to get us through the weekend because the iv radiology team isn't in on the weekends and with me now needing the heparin drip for the blood clot they need the central line because the heparin is constant. 

That was my fun Saturday.   

Friday July 8

Woke up in my hospital bed.   Didn't get much sleep.  I was in a lot of pain and couldn't get comfortable enough to sleep.

The doctors came in and made their rounds.  Once again they said everything mechanically is fine.  It's probably medicine related.  I was still really unsteady on my feet.  I couldn't go to the bathroom on my own.   They are thinking about giving me b vitamins to hopefully help with the weakness and fatigue.  

I stayed in bed most of the day because I could hardly move.  I was on the 10th floor which is a med surge floor so they put in for me to get a bed on the transplant floor.   Around 7pm they moved me.  I just chilled out the rest of the evening and watched tv.   Nothing too exciting.   I was up until around 11 and finally fell asleep.  I was up off and on all night because of the pain.  Hopefully today will be a better day.  I will post more later.   Have a good day.