Thursday November 12

I woke up in the morning and straightened up the house.   I invited a bunch of people over for dinner so I wanted everything to be spotless.  

I ran over to Sean's shop because my car was showing an engine code.   He hooked it up and sent me over to another garage for them to look at it.   Turns out they put the wrong sensors in.   I had a dentist appointment for a cleaning so I went to that quick and went back to the garage and waited for them to fix my car.   It only took about 45 minutes.  The engine lights are off now and there are no more codes.   

I stopped at the store on my way home and got some soda, chips and dessert to have with dinner.  I chilled out and put my fluids on for the afternoon.   

Around 5 people started showing up.   My whole family came for dinner, Josh and Alesha came with the kids, Brynn came for dinner, Kelly and Thomas came. It was nice being surrounded by so many people I love.   It's also really overwhelming.   We had a really good time.   It was hectic but nice that everyone was here.   

After they left I put on my tpn, drank my sleepy time tea and went to bed.   I fell asleep around 10 and woke up about three times.   I was up bright and early at 6 this morning.   Dad and I are going to spend the day together today since he's been away all week.   I'm excited to be able to spend time with him.   I'll write more later.  Have a good day today! 

Wednesday November 11

I woke up early.   Got dressed and went in to Clipper to visit.   I stopped on my way in and got a bouquet of flowers for Kelly along with her favorite breakfast to brighten her day a little bit.   

I was at Clipper for about four hours visiting and making my rounds.   I tried to get to everybody I wanted to see but there were some people not at their desks or not in and I'm sorry I missed you on my rounds.   

I want to say something to all my co-workers.   I wouldn't be where I am without your love and support.   I have made so many great friends in my employment there and I truly can't tell you enough how much I appreciate each and every one of you.   It's really hard being away from home but you make it easier by sending messages via Facebook, sending cards in the mail and just calling or texting to check on me.   I really miss home and you all make it a little easier for me.   So Thank You from the bottom of my heart.   

It was so nice visiting and a little emotional for me but I had a great time.  Hopefully next visit I'll be post-transplant and on my way to a full recovery!!!   Please stay in touch and keep the positive energy coming my way!!  

After Clipper I went to visit Jody for a little bit.  I put on my fluids and hung out.  Then Amber picked me up after she was done with work and we went to the spa.   We had facials and manicures.   It was a lot of fun and nice to spend quality time with her.   We got home around 9.   I put on my tpn and went to bed.   

I had a really rough night last night.   My steroids created thrush in my mouth again so my tongue and throat are coated and really sore.   It kept me up most of the night.  It really sucks.   Then around 4 am my bag started leaking.   I had to get up and clean up the mess and change my bag.  I never went back to sleep so I'm thinking I'm in for a really long day.   I have a dentist appointment at noon today for a cleaning and then tonight my family is coming over for pizza.   I may get daring and bake a cake.   We will have to see how I feel.   

Well....that was my day yesterday and my evening.   I'll post more later.  Have a good day. 

Tuesday November 10

I had my clinic appointment this morning.  It went really well.   All my labs look good.   My liver functions are staying up.   My pain and nausea are much better.   I'm not taking any pain medicine at all.   They adjusted my steroids a little bit to see if I can sleep better by lowering the dose around bedtime slightly.   Hopefully it helps and I get a good nights sleep tonight.   

We were done with my appointment by 9:30 this morning so we hopped in the car and headed to Lancaster.   It rained the entire trip and was really foggy in the mountain portion of the turnpike.   We made it home in 3 hours and 45 minutes and we stopped three times so I could empty my bag.  Pretty good timing.  

After we got to Lancaster I went to visit Amanda.  Last visit I couldn't go see her because Sofia had strep throat.  I took my fluids with me and did my Iv while I was there.   I got to spend some time with Sofia and saw the boys for the first time in months.  I really miss them.   It was nice being able to chill out and spend quality time with her.   Georgette and Butch came over as well so I was able to see them and spend time with them as well.   

Aren't they the cutest kids ever!!!   I love them and miss them so much!!!

I left Amanda's and picked up Mom's dog Ringo from boarding.   I took him home and dropped him off and then I went to Cyndee's to see my puppies and to visit with her a little.  My dogs were really excited to see me.   I feel really bad leaving them.  I wish Wyatt got along with Ringo.  I would bring them to Mom's to stay with me if they got along.   We are just afraid to try putting them together because they are both male and pretty aggressive.   I wouldn't want Wyatt to hurt Ringo since he's so much bigger.  

I really miss my dogs.   I would love to bring them to Pittsburgh with me.  I might talk to Colin about it and see what he thinks.  I think it would help my state of mind.  We will see.  

On my way home from cyndees I stopped at Shawn and Courtney's because I wanted to see them.  I hung out for about an hour and then left so I could put on my tpn.   I'm now laying in bed watching Big Bang Theory.  I'm hoping to get a good night's sleep tonight. Wish me luck.  I'm going to need it.  Have a good night.   Until tomorrow....

Monday November 9

I slept a little better last night.   I was in my own bed so I'm sure that helped.   Hopefully I will sleep tonight.   We have to get up at 6am to be at the hospital at 7 for my usual Tuesday appointment.   

Today was a lazy day.  We rented two movies and hung around the house.   We rented The Gift.   It was pretty good.   I would recommend watching it.   We also rented The Duff.  Not really worth the time to watch it.  I wasn't really impressed.  

I straightened up the house and did some laundry just so when I get home I won't have to worry about anything and we will come home to a clean house.  I had to change my osteomy bag today too which takes a lot of time.  

Mom is doing some work and I'm watching the news.   Wish me luck on sleeping tonight.  Sweet dreams.  I will check back in tomorrow.    

Sunday November 8

Got up early this morning and went to breakfast with my mom, Aunt Peg and cousin Mark.   Then we went to Honey's and hung out for the morning.  

My Aunt Joan and Uncle Jesse came to have lunch with Honey for her birthday so we ordered subs for lunch and hung out a little while.   Mom and I left around 1:30 to head back to Pittsburgh.  

We made it home safe and sound.  We are just hanging out and watching tv this evening.  Not really feeling too adventurous.   We made it home in about an hour and forty minutes.  We had to stop a couple of times so I could empty my bag.  That always adds to our drive time.   

It's getting to be about time to put on my tpn and get ready for bed.  Have a good night.   Hopefully I can get some sleep tonight.  

Sweet dreams!

Saturday November 7

Woke up early and went with Shawn to the cemetery this morning to visit my grandfather and uncle's grave sites and to pray.   

After that we headed over to Honey's for the day.   We got there pretty early but she was awake and out of bed.  We hung out there all morning and afternoon.  Her birthday pizza party was at 5:00 so I had gotten decorations at the store and Shawn and my cousin Mark helped me decorate for the party.   

I was feeling a little weak today so I put on an extra bag of fluids just to be proactive and make sure I was well enough for the party later and I wasn't too weak.

It was so nice seeing everyone!   Honey had a great time.  I haven't seen some of my cousins in over 5 years and I got to see them last evening.   It was a lot of fun catching up.   

Here's just a couple of pictures from the evening.  Honey was really happy.   Sunday the 8th marks her exact 96th Birthday!!!   She's in great spirits and great health!  She's really loved and hopefully she's feeling all the love this weekend!   

After the party Dad and Shawn went home.   Mom and I are going back to Honey's for lunch Sunday and then we are heading back to Pittsburgh for a few days.  Colin is hunting this week so I'll be hanging out with my mom for the week.   She's going to go to my clinic appointment with me on Tuesday and then she's going to bring me to Lancaster after my appointment so I can visit and since Colin isn't going to be home.  

I'm having another sleepless night tonight.   Hopefully I can get back to sleep.   I thought updating my blog might help me become tired again.   Hopefully I can get back to sleep.   Have a good night.  I will post tomorrow (today).   Until then....sweet dreams!

Friday November 6

I fell asleep ok last night but I woke up at 2am and wasn't able to get back to sleep.  I'm exhausted.   Hopefully I'll get some sleep tonight.  

We went to breakfast this morning.   I obviously just partake in the enjoying the company of my family.  We went to visit my Grandma and Pap.   It was nice to see them since I haven't seen them since they came to visit me in the hospital.   After our visit with them we went to Honey's.   We hung out here all day.  I'm super exhausted.   We are meeting my Uncle Rick for dinner and then back to the hotel to get some sleep hopefully.  

Time will tell.  Wish me luck ;).  Have a good night.   Sweet Dreams!