Wednesday June 29

Woke up, got dressed.  We got ready and went to Eat N Park for breakfast.  I had an egg and cheese burrito.  It was ok.  I haven't been too impressed with my breakfasts lately.  I think my tastebuds are all out of whack from the meds.  I don't get the full tastes anymore.  

We ran to the car wash and Colin vacuumed the car, cleaned the inside of the windshield and ran it through the brush wash.  It looked really good when it was done.  We went back to the apartment.  I took my book and say at the bistro table so Colin could vacuum and dust.   The house is spick and span clean.  

Mom came to visit and got to the apartment around 10.  We hung out a little bit and then went to Arby's for lunch.  I couldn't really taste anything but ate anyway.  We stopped at target so I could exchange a game.  Then we stopped at the grocery store to grab a couple things.  We also got two movies from the Redbox.

We got to the apartment and put away the groceries.  We watched tv for a little bit and I helped mom with some things on the computer.  The maintenance guy came to exchange one of the blinds in the living room in the midst of all this.  The blind has been stuck in the same place since we moved in.  Now they move up and down and open and close smoothly.  He left after about 20 minutes. We got done on the computer around 4:30 so I put our frozen pizza we got for dinner in the oven.   

We ate dinner and put in one of the movies.  We spent the rest of the evening lounging.  I drank some tea, took my night time meds and laid down.  I haven't fallen asleep yet so I'm hoping to fall asleep until I have to get ready for clinic in the am.  So....have a good night.  Sweet dreams!

Tuesday June 28

Woke up and took my 6am med cocktail.  I got up, showered, changed my ostomy bag and got dressed for the day.  My stomach was feeling a little better this morning and because I have to eat when I take my meds we decided to go to Panera for bagels.   We got in the car and decided against it.  There's a place called Waffles Inc that we have been seeing commercials for and everyone raves about.   We decided to go there.  They didn't open until 8 and we got there around 7:30 so we just drove around and checked out the area a little bit.  

We've been down there before but never really took the time to see what small stores they have. One of these days when I'm feeling better and have the energy I may go down during the week and walk around and check them out.   Some of them look pretty interesting.

We went back to the breakfast place and sat outside since it was a gorgeous morning.  I had waffle crepes and Colin had some sort of waffle with eggs on it.  It was pretty good.   The place was small but really cute.  

After breakfast we headed to Target to get my prescription refills.  While we were there we grabbed a camping chair so that I can sit outside in the grass along the river and read my books.   It will get me out of the house and the pool at the complex is always crazy busy and I can't get in the water so I don't want to just lay there by myself and I don't have a bathing suit here so I'd have to go out and get one.   I'm not sure I want to get into all that mess but it's early in the season so I may change my mind.  You never know!!  We also went down the game aisle and grabbed a couple of board games.  I stink at Monopoly and that's the only real board game we have here.  We have chess and checkers too but I don't know how to play chess and checkers is pretty boring.  We got boggle, battleship, sorry and a game called snap.   Something different to do to occupy our time.  

We left Target and headed home.  I went through all the mail, paid bills and organized everything.  Colin spent the afternoon cleaning the house, scrubbing the floors, doing laundry, cleaning out the fridge etc.    he was definitely on a mission.  I stayed on the couch and watched.  I wasn't much help.  

Lunch came around and I had tuna noodle casserole for lunch and Colin heated up leftover chicken.   We ate and then played Boggle for a little bit.   We relaxed and watched tv until dinner time.  We ended up going to Cheesecake Factory since I still have a bunch of gift cards for there.  I had chicken with rigatoni and Colin got a club sandwich.  We ate and ordered dessert to go.  We got home, I took my meds and put on my pjs.  We watched tv for a little bit and then got out our desserts. I debated forever on which one to get and I was disappointed.  It wasn't horrible, it was just not what I expected.   I ate about half and put the other half in the fridge.  I figured I'll eat a little at a time since it's so unbelievably rich.  

As the day went on I was feeling a little better.   Towards bedtime, I started to get shaky again and my blood pressure was getting higher.  I went in to bed around 7 and just chilled out.   I took my 8 meds and fell asleep by 9:30.  Of course I was watching Chopped when I fell asleep.  My favorite show ever.  I kept waking up off and on and got to see boys and pieces of it because they played the same three episodes over and over again all night.   It was pretty funny.  

It was a restless night but I did sleep better than the previous so I'm making some progress.  I've been up since 3am so I'm hoping to not nap today and make myself tired enough that I'll get a good night's sleep tonight.   We have to be in clinic tomorrow at 6 so I'll have to get up around 5.  

Well....here's to another day.  Hopefully an uneventful one.   Until tomorrow!   Have a good day!

Monday June 27

Woke up at 5 so we could go to clinic.  Got to clinic.  They did my blood work and took labs.   I had my scope and biopsy scheduled for 8 so they prepped me and got me ready for that.

The Gastro Doctor came in and started the procedure.  It was extremely painful.   Probably the worst biopsy I've had pain-wise yet.  He put the scope in twice as far as they usually do and he put in a lot of air as well.   I was in tears clenching the poor nurse's hands the whole procedure.   It was only about 15 minutes long but it felt like an hour.   

Once it was over they gave me some iv fluids and some pain medicine to try and calm

Me down and get the pain under control.   The good news was that everything looked good on the scan.  The biopsy results take about 24 hours to come back so I wont have them yet.   My potassium was low so they gave me an iv of that as well.  We hung out at the hospital until it was done.   Once it was done we left and got into the parking garage.   All of a sudden I felt like I was going to pass out.   My head started spinning and I felt flush.   Colin grabbed ahold of me and there just happened to be a nurse walking by.   She put me in her car while Colin went and grabbed a wheelchair.   We got in the wheelchair and he took me back in to the clinic.

They wheeled me back to the room and called the doctor.   They gave me some more pain medicine, checked my blood pressure and vitals and decided to send me for a ct scan.  There was a decent amount of blood coming out of my ostomy so they wanted to rule out any kind of perforation or tear from them scoping me.  We waited about an hour.   They took me for the ct scan and then back up to my room.  

We waited about a half hour and Dr. Cruz came in and said everything was good on the ct scan.  They checked my vitals again and said to keep an eye on everything and if it gets worse call my coordinator.  Colin wheeled me out and got the car.   We headed home.  I put on my pjs and laid on the couch.  I headed to bed around 8 and just chilled out.  My stomach pain wasn't subsiding.   I tossed and turned all night to try to stay comfortable.  That was my fun day!   I hope yours was better.  

Sunday June 26

Woke up, took my 6am meds.   Got showered and dressed for the day.

Organized my medical cabinet and got rid of things we will no longer be needing since I'm done with the tpn and am eating and drinking real food and beverages.   It's so crazy how far I've come.    I had some cereal for breakfast and watched tv for a little.  After a little bit I went to the bedroom to pack up some winter stuff for Colin to take home with him this weekend when he goes to visit the dogs.  I got a bunch of medical supplies for Cyndee to drop off at hospice.   They are always so grateful for things like that.

After that we went to the bakery.  We grabbed a couple little mini desserts.  We headed home, returned the movies and stopped at Marshalls.  I got a gift card for my birthday for there and I wanted to get some ice cube trays.  I got ice cube trays and a banana holder and still have $15 left on my gift card.  

I chilled out til dinner.   Colin made teriyaki chicken with veggies for dinner on the new foreman.  It was delicious!!!   While we were eating....my phone was blowing up from the event.  See below!!  Sorry I missed it!

 

 

 

 

 

 

 

 

 

 

 

 

 Thank you to each and every one of you who attended Heather's Rock for Health at Tellus 360.   I am so sorry that I was unable to attend.  I heard the turnout was unbelievable and that the bands and dj were amazing!   This past year and a half has been so difficult and I couldn't have gotten through it without your love and support.  I am completely overwhelmed and touched by each and every one of you.   I have met so many new people along this journey as well.   I can't wait for the day that I can see each and every one of you face to face and hug and thank you for your love, support and prayers.  I have a long road of recovery ahead of me still but know I can do it with your support.

I hope you all had a great time and I look forward to seeing pics!   Have a great night!!   Miss you and love you!!    Thanks again for everything!!!!   ❤️😘💜❌⭕️❌⭕️💚😘💗

Saturday June 25

Woke up this morning after a horrible sleepless night.  Took my medicine and had cereal for breakfast.

Around 9 we went to the grocery store to grab a couple things we forgot yesterday.  We stopped at Michaels too to get a basket for a gift we are making.  We got home around 10.  I put my pjs back on.  I laid on the couch and we watched tv.  

I wasn't feeling well.  I was really weak and shaky.  I took my lunch meds and Colin put on my iv antibiotic.  It ran for an hour.  I got up and got lunch together once my iv was done.  We had the tuna casserole I made yesterday.   Colin didn't like it and threw his away.   He's not really big into hot tuna.  I love tuna casserole which is weird since I hate seafood.  

After lunch I went into the bedroom and laid down for a little bit.  I fell asleep for about a half hour.  I got up and put my laundry away.  Colin has been doing all the laundry but I've been letting mine pile up.  Just doing that took a lot out of me.  I went to the living room and laid on the couch.   We put in a movie and chilled out for a little.

We decided to order pizza for dinner since Colin wasn't too happy with his lunch.  They delivered it around 5.  It was ok.  A little too cheesy for my liking if that's even possible!!!  But Colin enjoyed it.  After dinner I chilled out on the couch.  I'm still not feeling well and my blood pressure is high so I decided to go to bed.  I'm laying in my bed watching Cruel Intentions.  

I'm staying here for the rest of the night.  Hopefully I'll feel better in the morning.  Colin is checking on me every 2 minutes.  He's afraid he's going to come into the room and I'm going to be passed out again or something.   He's really stressed out.  

Well...I hope you have a good night.  I'm going to try and get some rest and hopefully I'll get some sleep tonight.  Have a good night.  Sweet dreams!

Friday June 24

Slept ok last night.  I was tossing and turning a lot.   I got up and out of bed.   I had fruit loops for breakfast.   After breakfast I got showered and changed my osteomy bag.  It's so nice to be able to actually take time to shower.  I was even able to shave my legs!!!   Amazing feeling!   I wore shorts today because I could.

It's really hot here today.  Humid and 89.  We left the house once today.  We went to target and got a George Foreman grill.  Then we went to Rocket Fizz, this really cool candy store in the waterfront.  They have all kinds of candies and exotic sodas.  I needed a sugar fix.   Colin wasn't too happy bc he thinks it's too much but I keep telling him I deserve it.  

We stopped at Friday's and grabbed a quick lunch.  We returned the movies from yesterday and rented three more.  We were home by 1:30.  Once we got home we watched Ride Along 2.  I fell asleep but Colin said it was pretty good.   I got up and made tuna noodle casserole so I have it for the week and I made captures pasta salad to have with dinner.   Colin is going to try the foreman and make burgers.   

I am feeling shaky and weak today.  I still have the body aches and headache but haven't taken any pain meds.  I don't like the way they make me feel so I am trying to work through on my own.  It could be a long day.  

I finished making my stuff and went back to the couch to chill out.  It took a lot of energy out of me doing that so I didn't leave the couch.  Colin got up and cleaned my mess.  He started dinner too.  Dinner was ready at a little after 5.  It was a delicious burger and the foreman got a lot of the fat out of it.   He was really happy with it and how it cooked.  We also had fries and the caprese salad.  It was a good dinner.  

He cleaned up dinner, gave me my 6:00 meds and took my blood pressure.  He put in a movie and we laid down to watch it.   Around 7, I decided to go to the bedroom to lay down and be more comfy.   He came in and got me settled then went back to finish his movie.   He checked on me every 10 minutes.   After the seizure last week he doesn't want to leave me alone.  Hopefully he will get over it in time but I'm sure it was scary for him to find me the way he did.  

At 8 I took all my night meds and now I'm in bed for the night.  Colin is laying beside me and we are watching Say Yes to the Dress.  Not his choice obviously ;).  Hopefully we will get some sleep tonight.  I will post more tomorrow.  Sweet Dreams!!

Thursday June 23

Woke up feeling a little better.   Got about 3 hours of sleep.  

The docs made their rounds around 6:30.  I ordered breakfast and waited for Colin to get there.  We went downstairs and grabbed hot chocolate.  The docs had some iv replacements to give me but said once they are done I could go home.   They gave me a lecture about not doing too much and taking it easy.   They said I'm going to feel awful for at least another week.  

We grabbed lunch from the cafe.  After lunch around 2 or so my iv's were all done so we got ready to go.  We packed up and headed home.

When we got home I changed my clothes and we ran to the grocery store because we had absolutely no food in the house.  We stopped and grabbed dinner and headed back home.   We rented movies so we are and watched Dirty Grandpa and Hateful Eight.  They were both pretty good.  It was an uneventful eve.   I went in to bed around 8.  I fell asleep around 10 or so.   Had an ok evening.   Today is going to be uneventful as well.  I'm working on the golf stuff.  I will post more later.   Have a good day!