Tuesday, July 7, 2015

Tuesday July 7

Made it home safe and sound yesterday.  The ride home was torture.   Between being in pain and already nauseous beyond belief we then ran into torrential downpours the majority of the drive.  You couldn't see ANYTHING!!   It was scary at times but we made it!  There were also the few mishaps while in the car.   My bag broke almost immediately upon getting on the turnpike.   It was all over me.   We pulled over on an emergency pull-off not realizing that it was a construction entrance.   In order to clean myself up I had to take off my shirt and pants.   So there I was, pretty much stripping down inside the car and the guys in the trucks could pretty much see everything.  Modesty is thrown by the way side when you have something like this.   The bag ended up breaking two more times.  Both times while the car was moving.  It was a mess!!   I guess I broke in Mom's new car!   She was very patient with me and didn't get angry about it at all.  I was so relieved to be home in my own bed last night!   Colin was just as happy.   It's the first night in over a month that he was able to sleep beside me.  I fell asleep around 7 last night and didn't get out of bed until around 11 this morning.  Today I have to run to the hospital for some outpatient testing but other than that I have nothing going on.  Just going to chill out and take care of myself.

Monday, July 6, 2015

Monday July 6

I'm headed home today!!   The docs just made their rounds and said everything is on track and I can go home today!!!   My Mom is here and we are packing the room and getting ready to get in the car!   Yay!!!!

Sunday, July 5, 2015

Sunday July 5

Today the doc said that we may be able to go home tomorrow.   He said he can just ask a local surgeon to remove my stitches for me and then I won't be stuck here for another week.  I have such mixed emotions about everything.   This surgery has really taken a toll on my body.  I'm not sure how on earth I'm going to get through the actual transplant surgery but I'm trying to get myself ready for it.  Hopefully each day gets better and my mind will be stronger to deal with the complexity of what is inevitable in my future.  My mom came to see me yesterday so Colin headed home.  Mom stayed with me last night and is going to stay with me tonight as well.   Hopefully she will be bringing me home tomorrow.  Until then...have a good day and a great night! 💚💙💜😀

Saturday, July 4, 2015

Saturday July 4. Contd

Well....for those that have weak stomachs....stop reading 😜

For those who don't.....I was able to shower again today so I took a picture of my roadmap of an abdomen.   It's such a mess but every once in a while I get a curious request to know what it looks like or feels like.   Well....here it is....



On the left in the photo is my new stoma where all the waste comes out.   Down the center from my breasts to my groin is the incisional site.   On the right in the photo is where the old stoma was closed up.  It's definitely a roadmap and a bikini will never be in my future again.  I was once again reminded today that had this keep going unnoticed by th hospitals I would have died.   Not a good feeling to have.  Just makes me count my blessings.  Until tomorrow:   Goodnight, sweet dreams!

Saturday July 4

Happy 4th of July!!

The doctors just made their rounds and said everything is looking pretty good.  They said that I should be on track to go home on Monday.  I had an ok night last night.  The pain only woke me up a 

Friday, July 3, 2015

Friday July 3

So,,,today was a good day.  I walked 5x so far.  I did a small flight of steps AND I took a shower!   I have graduated from the pain pump to oral meds.  I hope to be home next week.  The docs seem to think I'm on track.   Thank you for your support, love and prayers.  I don't think I could do this without everyone I have standing by me!   I will write more tomorrow!  Until then....goodnight!  ðŸ˜˜

Thursday, July 2, 2015

July 2, 2015

I'm am still in recovery after days of being here.  I want to sincerely thank you all for the thoughts and prays through this difficult time.   I received some special visitors today.   Brooke, David, max, gray and 
Libby.  Love you for making it a apecial visit!


Until tomorrow!  Goodnight!