Monday, June 29, 2015

6/29

Well I can finally exhale after holding my breath for the last 2 1/2 hours. Heather is in recovery and doing well. She should be back in her room in the next hour or two.

I just had a consult with Dr. Sogawa. He seems like a good man, between him and Dr. Cruze they are the best in the world at what they do. I was informed that the surgery went well, and that heathers one and a half feet of intestine was in fact twisted. In an effort to prevent this again, they realigned the intestine and moved her stoma to the other side. They also took a liver biopsy and said it looked good...to the eye that is... I'm sure they'll run a battery of tests on it. All in all it went well, the scar tissue was not as bad as they thought it might be,  and everything in there looks healthy. Heather will probably rest the rest of this evening and be up and Adam in the morning. If there are any new developments I will update this again.

-Colin

6/29 12:30pm

So, (by her request) I've taken over the reigns for H while she's under knife.. I'll do my best to update and inform everyone. About 11:00 we were told the OR called for her, 45 minutes and a break in the chain of command later, she got to pre-op.We said our goodbyes and off she went. As they wheeled her away she shot me a smile and I realized once again, she has more fight in her little finger than I do in my whole body. One of the many reasons I married that girl.They told us the surgery should take anywhere from 4 to 6 hours. Now we wait...I'll do my best to update this when she gets in her room and settled. 

I also discussed with her getting a new sign off line like  "good night America" or  "Heather out" we'll work on it...

-Colin 

Sunday, June 28, 2015

Sunday June 27

Well.....in less than 24 hours I will be under the knife.   It's so nerve racking!  

Colin came to the hospital today and was here before I even woke up which was a nice surprise.   Amber headed home with the twins.  I spent the morning playing games with Colin and the twins.   Mom and dad left around the same time Amber did and went to visit Honey for the afternoon.   Colin and I hung out and did nothing exciting.   It was nice.  I will have Amber update my blog and/or Facebook tomorrow.   That way everyone is updated. 

Until tomorrow!   Send lots of love and prayers my way!

Goodnight! 

Saturday, June 27, 2015

Saturday June 26

Apparently I don't know what day it is.  

I labeled Friday Thursday on my previous post.

Today was nice.  My dad brought my grandma and pap to visit.   They got here early this morning.  Then mom, Amber, Carter and Caden showed up to visit.  We played cards and some games on my iPad.  It was very nice getting my mind off of things.  Dad took grandma and pap home around dinner.  Then My cousin Melissa came for a visit.  She brought two of her kids Mia and Stevey.  

It was a very nice surprise.  They stashed until about 9 and then left to head home.  Mom, Amber and the boys left shortly thereafter.  I'm in bed now waiting for my pain med and then I'm sure I'll be out.  The nurse is coming in now.  Goodnight!

Friday, June 26, 2015

Thursday June 25

I woke up this opening around 9:30 to a rustling noise. I rolled to the other side of the bed and my dad was sitting there.  He woke up at 4 and headed to Pittsburgh.  It was a nice surprise.  
The nurse came in to do my vital signs.  I got up and got showered and cleaned up. 

The doctor came in around 11 and said that I need surgery.  He said that Surgery is Monday at 11.  Not lathroscopic.  They have to cut into the muscle and scrape and cut around it to remove the scar tissue.  They will do the liver biopsy while they have me cut open.  My belly will about a 6" incision.  Recovery is a couple of weeks but they may be able to let me go home earlier rather than later. 

I've been taking the afternoon to let it all sink in.  Keep praying for me.  Until tomorrow.  Sweet Dreams!

Thursday, June 25, 2015

Thursday June 25

So....last night they came into my room at 9:00 pm and informed me that I was being transported in a half hour.  That's about when two paramedics showed up at my room with a stretcher.  Luckily I had organized my stuff earlier in the day in preparation to be transported. They strapped ne on the gurney and put me in the ambulance.



Once in the ambulance the paramedics were talking to me for a while.  I ended up falling asleep before we even got on the turnpike.  I woke up when we were twenty minutes away from the hospital.

They took me right to my room and got me settled in quickly.  It was about 2:30 am.   This morning I woke up and met with the doctors.   They decided to send me for more testing before they schedule the surgery.  

I was taken for testing around 1:30.   They pit a rubber catheter into my stoma and used it to fill my intestine with contrast.  Once it was full of contrast they took pictures.  Afterwards they emptied it out again and replaced my bag with a new one.

I slept most of the afternoon.   The doctor stepped back in early in the evening to tell me that they are going to sit down tomorrow as a team and review the testing.  At that point they will decide what they are going to do as far as surgery is concerned.  I felt like they were telling me that there's a chance i may not need surgery.

My dad is coming tomorrow.  I should know more then.  I will keep you posted!'  

Wednesday, June 24, 2015

Wednesday June 24

Well....it's official!!  I'm being transported via ambulance to Pittsburgh today to get prepped for surgery.  Unfortunately it's not my transplant surgery, it's for my current bowel obstruction.  They are coming to pick me up at 9:30 this evening.  I am feeling extremely anxious.   I'm stressed out and I'm scared to death.  Everyone keeps telling me it's going to be ok but with everything I've been through I am having a hard time not freaking out.  

This is a small step in the right direction.  I'll be going to montefiore hospital in Pittsburgh.  I will update you once I know more.  Until then.....goodnight

Tuesday, June 23, 2015

Tuesday 6/23

No real news today.  I'm still in the hospital and am still waiting for Pittsburgh to schedule my surgery.  I'm still in a LOT of pain and am extremely nauseous.  Hopefully I will have answers tomorrow.  Until then...goodnight! 

Sunday, June 21, 2015

Sunday June 21

Today is Father's Day!   Happy Father's Day to all the amazing fathers out there. 

My day today was nice in the morning.  Colin came first thing this morning and helped me shower and get dressed.  He went home in the afternoon.  Around lunchtime my dad, mom, Amber, Carter and Caden came in to visit so that we could surprise my Dad with a Father's Day gift.  We got him a gift certificate to race a car on a racetrack since he's so in to Mopar.   He seemed to really like it.  

While my family and as here, Butxh and Georgette stopped in for a visit (Amand's parents).  It was nice visiting with them as well.  I haven't seen them in a while.  Everyone left and went home around 3.  

After they left I took a small nap.  The doctor came in and woke me up.   She said that if I'm not better by the morning she is going to contact Pottsburgh to have me transported tomorrow.  I was somewhat arguing with her because she doesn't know me and my story and she's just making these off the wall decisions that she should not be a part of at all.   I called Dr. Harborson and explained the situation with him.   He told me there is no way he will let her do that and that he doesn't understand what she is doing.   So....now I'm stressed out beyond belief.  She better not make any decisions regarding my care.  She has no idea and I have had issues with her in the past.  Her making decisions in regards to me is a joke.

Now I can't fall asleep and I'm freaking out.  I left an urgent message for Mary so I'm hoping that she can put the brakes on this decision.  

I will update you tomorrow.  Until then, goodnight. 

Saturday, June 20, 2015

Saturday June 222

No changes today.  The medicine seems to be helping. The doctors are basically going to get me well enough to go home and then go to Pittsburgh for surgery the surgery.

Mom and dad left and I watched a couple episodes of Orange is the New Black.  I wasn't sure if I would like it but I'm getting hooked now.  My mom came back this evening with the twins and we played go fish and games on my kindle.  They left and I've been  in my bed ever since. 

It's about 10:30 now.  I have been listening to the thunder for a while.  I'm hoping to fall asleep pretty quickly.  Goodnight!   Until tomorrow. 

Friday, June 19, 2015

Friday June 19

I got an early call this morning from Shawn.  He is at the beach with Courtney.  He called to check on me like normal but he tried a couple of times before he was able to reach me (I was napping and the phone was on silent).  I called him back and asked if I was ok or if there was any news from the doctor.  I asked him if everything was alright and he told me he had a bad dream so he wanted to hear my voice.  He told me he loved me and I told him not to worry and to enjoy the beach.

Well....I have good news and I have bad news.  Good news- I'm not being transferred to Pittsburgh yet.  Bad news- I have to have surgery on my obstruction in Pittsburgh.  It's not an emergent thing at this point in time but could potentially create an issue if left go.  The doctor in Pittsburgh is actually going to look at his schedule on Monday and then they will schedule me.  It will be in a couple weeks.  A couple of questions I think you might ask...
Do I have to stay in LGH until you have to go ti Pittsburgh?  No.  Once they get me stabilized here at LGH I will be able to go home.

What is the "diagnosis"?  I have a bowel obstruction in the area of my stoma (where my intestine is protruding out to empty in my ostomy bag).  The intestine appears to have adhesions located on the outer wall which is potentially squeezing it so that it is partially closed off.  There's also a chance that it is just trying to expand in size naturally but it is telescoping on itself.  

What would the surgery fix?  They will do laparoscopic surgery if at all possible but we won't know that for sure until the doctor starts operating.   He will scrape the scar tissue (adhesions) out and if necessary he will re-section my bowel (cut out the kinked portion and re-attach what's left)

Will this affect me being officially listed on the transplant list?  While the doctor is performing surgery he is going to take the liver sample he was going to do in August.  They can use that biopsy to compare to March and hope that it will give us enough data to petition the insurance company to officially approve the transplant.  

How extensive is the surgery?  The surgery will be a few hours long.  I will be hospitalized for 7-10 days depending on my progress.  After being hospitalized I will have to stay close to the hospital for a week so that they can monitor me on an outpatient basis.  

If you have any other questions about it, don't be afraid to ask.  I will be more than happy to answer them.  

Besides that, I had surprise visitors over lunch.  Amber stopped with the twins on her lunch break.  Colin was here already and he was hungry so we all went to the cafeteria and they ate. They hung out with me for about an hour and then left so she could go back to work.  Colin headed home early this evening because he needed to mow and do laundry.  About an hour after Colin left Greg stopped in to see me.  We chatted for a little bit about my health, Colin, Greg and Greg's family.  It was nice to have a new face to break up the monotony.  Mom stopped in after work and brought me new pjs, a sign that says "You are my sunshine", a plastic shower caddy to put all my crap in and candle.  She left around 7:00 to get some work done at home.  

While mom was here the pain management doctor stopped in to talk to me.  He gave me a pain pump to try to keep the medicine in my system.  I have had the pump hooked up for about two hours now.  It seems to be working a little.  My in site is really irritated now too so the iv team has to come to my room to take a look at it which usually it means I need a new peripheral iv site.  Yay!  More needles!

I'm exhausted again so I'm going to call it quits for the night.  Have a good night!  Send lots of prayers!

Thursday, June 18, 2015

Thursday June 18

After I typed up my message in the blog last night I got a surprise visitor.  Dr. Chory!   He saw my name on the surgical consult so he stopped in my room to see me.  It was a pleasant surprise.  He gave me a huge hug and sat down on my bed.  We talked about things for a half hour.  He said he will stay in touch with Pittsburgh so that he knows what is going on and where we stand with surgery.  It was nice to see him.  He gave me a huge hug when he left and he told me he loves me.  I owe my life to this man!  I will never forget him and I will never let him forget me.  I felt a little better mentally after I saw him.  

Last night I woke up about every two hours or so in horrible pain.  The nurse last night came in a couple of times to check on me because she knew I wasn't getting any sleep.  She was giving me medicine to keep me company but for some reason it just wasn't working.  

I had a surprise visit early this morning too!  It was Katy.  She is a third shift nurse on the 8th floor where I'm usually admitted.  Katy is one of my favorite nurses that I have had throughout all of my hospitalizations.  She is extremely uplifting.  We chatted for a little bit.  She sat down with me, we held hands and she prayed for me.  
I feel like Katy was brought into my life for a reason.  We have a connection that was almost instant.  She is always checking on me and has a way of talking me through a difficult time.  When all of this is said and done, I am sure Katy and I will be friends.  Katy.....if you are reading this, thank you!  

The doctor came in around 9 this morning and told me they are still waiting for Dr. Cruz to review the ct scan and get back to them.  He's hoping that we will know something more tomorrow.  The waiting sucks.  I feel like I have to constantly wait on things.  My patience is beginning to wear thin.  I pray every night for patience.  After the doc came in, I took a shower and went for a walk to get things moving.  I took a little nap and then Colin showed up.  We were researching some things for the golf tournament.  He left and I watched a movie on Netflix.  

Mom stopped in to see me after she was done with work.  She stayed a couple of hours and went home.  I'm just laying in bed right now and praying that they will have answers for me.  I will touch base tomorrow.  Until then.....goodnight.

Wednesday, June 17, 2015

Wednesday June 17

I'm still in the hospital.  No news yet.  The doctor said that I'm staying in the hospital until they hear from Pittsburgh and that could take a day or two.  I still can't eat anything and I'm hardly able to drink anything either.  I tried some broth for dinner and threw it up.   They are keeping me comfortable with iv nausea and pain meds.  TV is boring.  I've been watching girly movies on Netflix.  I read a couple chapters in my book.  I took a couple of cat naps today.  Other than that, I'm still laying in this stupid hospital bed.  

It's no fun but I know it's where I need to be.  I will hopefully know more tomorrow.  

Until then....

Tuesday, June 16, 2015

Tuesday June 16

I was finally moved from the ER to a room early this morning around 2:30am.  It took a couple of hours to get me settled into my room.  The poor nurses had to fight their usual fight with the pharmacy to allow me to use my tpn.   They finally got the doctors involved and the nurse was able to hook it up.  I was given all my meds and they closed my door.  The last time I looked at the clock it was about 5:30.  I finally fell asleep.

Around 7:15, the surgeon came in to talk to me.  He said he didn't think surgery was necessary at this point but they are going to keep an eye on me and is going to have Lancaster Gastro follow up with me.  Around 9, Dr. Johnston came into my room.  Dr. Johnston is the doctor that was on call when my disaster happened in December.  He along with Dr. Chory saved my life That night. I have a special place for him in my heart.  

Dr. Johnston explained that I have an obstruction.  It's not a simple obstruction (because...why would it be?). There is scar tissue on the outside of what is left of my small intestine and it's basically "choking" the are where it is located.  He said a lot of times it resolves on its own.   We touched base with Mary and let her know I was admitted for the obstruction.   She asked the doctors to overnight a DVD with the ct scan on it.   She's going to compare it to the scan in January when I had an obstruction.  If it's in the same location and is behaving the same as the previous one, they may have to operate.  If I need surgery, she thinks it should be done in Pittsburgh so that they can be absolutely sure there is nothing that could effect me being listed for the transplant.  It's all very nerve racking. 

So....the rest of my day today consists of pain and nausea control.  That's really all they can do for now.   I should know more tomorrow or Thursday.   

On a lighter note.  I met this sweet girl through Facebook on Sunday who is interested in the house.   She started to follow me and read this blog.  She stopped into the hospital today because she knew I was admitted and brought me this absolutely gorgeous bouquet of flowers.   She is such a sweetheart.  


Aren't they beautiful?!?! 

Well...there's not much more to say.  I'm just going to chill out and hopefully I will start to feel better.  Please say a prayer that I will not need surgery and that this obstruction will resolve on its own.  Sweet dreams!!  Until tomorrow....

Monday, June 15, 2015

Monday June 15 (2)

Well....I'm being admitted to the hospital for a bowel obstruction.   I'm not sure what the plan is as of yet.  I'm being told that the surgeon will be by in the morning.  There's a possibility of needing an NG tube. Please pray for me that this resolves itself and that the NG tube and surgery are not needed.  

Monday June 15

Well...my morning started out great.  I'm sure you can all feel my sarcasm.  My home nurse came to change the needle in my port.   She tried the first time ....and missed.   She pulled it out, repositioned it and tried again...she missed.  She pulled it out, re-cleaned the area, got a different needle and missed again.  She moved it around and FINALLY got it in the right position.  

She drew 14 vials of blood again.   Afterwards I got really sick.  I had to cancel most of the showings of the house and ended up in the emergency room.  

We got to the emergency room around three.  They are super crowded.  We didn't get taken back to a room until close to 7.  I'm still sitting in the emergency room.   They did a ct scan and more bloodwork.  I'm currently waiting on the results.  

One major complaint....why on earth is it ok for people to go to the emergency room for a cold or cough or sore throat.  These people for some reason can't call and make a standard doctors appointment and instead bog down the er and the people with true emergencies are forced to wait even longer.   What is wrong with this picture?   It seems like one out of every three people in here should be going to a family practice and not the hospital.  It is extremely frustrating for me to watch this every time I am here for a true emergency.   LGH really needs to re-evaluate the way they do things.   I feel terrible for people I see that are in obvious pain and are having obvious issues and they are being forced to wait because someone that came in ahead of them has a cold.   

Well...my venting session is over.  I'm still waiting for results but will keep you posted.  Until then.   Goodnight! 

Sunday, June 14, 2015

Sunday June 14

I am still home.   That's a positive.  No hospital today.  I have nothing to report really.  I spent the day on the couch.  I was in a lot of pain and very nauseous.  It was a very difficult day.  There were a couple of moments where I debated on going back to the hospital.  I just kept telling myself I could stick it out.  

I made the decision today to re-post the house.  I wasn't too keen on a lot of the applications we received.  What I decided to do was re-post it on Craigslist and put it out there on Facebook.  In four hours, I scheduled 8 showings for tomorrow!

Keeping my fingers crossed one of these families will be a winner! 

That's all I have for today.  Sorry it's nothing exciting.  I'm headed to bed.  Until tomorrow! Goodnight 

Saturday, June 13, 2015

Saturday 6/13

I'm home!!!   So glad to be home!  I will write more tomorrow.
Goodnight 

Friday, June 12, 2015

Friday June 12

Unfortunately I'm still in the hospital.  I have been just as sick today as I was yesterday.  The doctors are just shaking their heads at this point.  My medications were changed today to hopefully overpower the nausea.   

I will touch base the tomorrow.  Sweet dreams!

Thursday, June 11, 2015

Thursday 6/11

Today wasn't any better.  I was able to get up and walk around a bit.  Then I was told it was ok to attempt eating a liquid diet.   My body was NOT happy with that.  I had about four spoonfuls of broth and two of jello.  I threw up over 16 oz of fluid.  It doesn't add up.  Now I can't keep anything down.  Not even sips.  I'm so frustrated and know my doctor is getting frustrated as well.  

I'm going to pray that I catch up on some rest tonight and that I will be feeling miraculously better in the morning.  The nurses keep telling me to hang in there. So much easier said than done.  It sucks.

Wednesday, June 10, 2015

Wednesday 6/10

Not much new to say for today.  I'm still in the hospital.  I'm still throwing up and still have a lot of pain.  The doctors are racking their brains on how to keep me from having to come in all the time but it seems as though this could be the pattern until I have the transplant.  

Colin came in after work and stayed with me most of the afternoon.  We did a lap in the hallway to get me moving but I got really dizzy. The nurse took my blood pressure and it was 85/47.  Not good.  They don't want me getting out of bed now unless one of the nurses is with me.  

Depending on how my night goes, they may just send me home tomorrow.  I'm just going to go to bed and pray that the nausea and pain subside.

Goodnight 

Tuesday, June 9, 2015

Tuesday June 9

Well.... I was admitted to the hospital last night.  I was really hoping to be able to ride it out but I just couldn't do it.  I was dry heaving a lot.  The dry heaving of course didn't help the abdominal pain.  My breaking point was when I started to vomit close to a half of a liter of Stomach acid.  Once it started coming out I couldn't get it to stop.  It was a horrible night.  I finally gave in and called Dr. Harborson and explained my situation.  He sent me to the hospital.  He said to go past the ED and he was direct admitting me so I didn't have to wait in the er for hours.

I got to the hospital and was in my room within twenty minutes of arriving.  It was very stress free which was a good thing because I was vomiting most of the time.  I had a rough night.  I was getting lots of emails from friends checking in.  I slept very little.  The nurses come in and out all night the first night to make sure I am stable and ok to get up and moving on my own. 

Today was a day of laying in bed and being medicated.  The doctors are giving me phenergan and zofran for the nausea and vomiting and fentinol and dilodid for pain.  All four of these medications will knock you out on their own, so you can only imagine what mixing them does.  It puts me in a zone but it still doesn't help me sleep.  It also helps with the pain for about two hours, then it wears off.  It's after 10:30pm and I'm still nauseous and dry heaving.  

My day has been pretty boring.  I am going to lay in bed and hope that this subsides overnight and I am feeling well enough to possibly go home tomorrow.   Big dreams!

Goodnight!

Monday, June 8, 2015

Monday June 8

Well....today was rough. 

I woke up this morning and de-accessed my port.  I got a showe and straightened up the house because the nurse was coming to re-access my port and take my blood.  I wasn't feeling well to begin with.  

The nurse tried accessing my port and missed.   She pulled the needle back out and put it in again.  Well....it is not a painless procedure.  It really hurts even when I have had the numbing cream on for a period of time.  I was really annoyed.  She accessed me and then took the 14 vials of blood for the day.   She left and I laid down on the couch. 

My head started spinning and that's when the vomiting started.  Colin got home and had a friend coming over to help him move some furniture.  They were moving stuff and I was laying down trying to get over being sick.  I had a scheduled doctors appointment with Dr. Harborson so I left when it was time for my appointment.  I had to stop on my way to throw up.  When I got to his office it wouldn't stop.  The pain is increasing as well.  He wanted to admit me but I really didn't want to go to the hospital.  I asked him if I could ride it out tonight and call him in the morning if it's not getting any better.  He agreed so now I'm home again.  Laying on the couch.  I'm still throwing up and still have a lot of pain.  

For tonight....please pray that this passes so I am not hospitalized again.  Until tomorrow.

Sunday, June 7, 2015

Sunday June 7

Today was my beautiful niece Libby' birthday party.  I woke up early this morning, picked up the twins and met Mehgan at That Fish Place.  She was In town for a brief visit so I was only able to spend an hour with her but I was happy to have that hour with her.  We walked around the fish place with a mission which originally was to purchase two frogs I promised Grayson because I missed his party in April.  The back story to that is that he wanted a turtle.  When we took him to get one they only had larger turtles.  They were way to big for his fish tank so he understood that it just wouldn't work out.  When I got there today... They had just received a smaller red eared slider.  Since I knew that's what he really wanted and that he was sort of bummed that he couldn't get one before, I decided to surprise him.  

I dropped the twins off at home and headed to Brooke's for Libby's party.  I took Libby's gifts in the house and said hello to everyone.  Then I grabbed Grayson and took him outside to give him his surprise (I didn't want to take away from Libby's party).  He was super surprised and grateful.  It was very rewarding to make him as happy as he was.  

We had lunch and then it was time for Libby to open her presents.  

(Ignore Max's feet in the corner of the photo)

I have never seen a child more appreciative and grateful as this precious little girl.  She just turned four.  She would scream excitedly with everything she opened and would thank everyone for every little thing.  She screamed several times "This is the best day ever!"   It was adorable.  We did the cake and then I decided to head home because I wasn't feeling well.  

I went home and rented the Boy Next Door with Jennifer Lopez.  Pretty standard movie.  The ending was very predictable.  I watched some tv, put on my iv and now I'm laying in bed.  Nothing too exciting.  Have a full afternoon takes a lot out of me.  

I'm hoping to fall asleep quickly tonight.  Wish me luck!   Goodnight!

Saturday, June 6, 2015

Friday 6/5 and Saturday 6/6

Friday started pretty early for me.  I was up and out of bed before 9 which is highly unusual.  Colin was home for work early too.  We decided to go run some errands and try and get some sponsors for the golf tournament.  Boy am I glad I'm not in sales.  It's really hard to get people to want to sponsor you in an event like that.  After a long day and multiple let downs we only had two people sign up.  We were both so exhausted that we laid down on the couch and watched a movie.  I think we both took about a two hour nap each.  I missed the entire movie.

Around 6 we decided to go grab something to eat.  (I of course am using the term lightly). We went to Hot Z where we used to go all the time when we were younger.   We thought maybe we could get them to sponsor a hole in the tournament.  They were so busy that we didn't have a chance to ask.

We went home and went to bed.

I had a rough night last night and was really nauseous. I was having so much pain that neither the pain medicine nor the heating pad helped to relieve it.  I didn't fall asleep until well after 4am.  I didn't get out of bed today until 11.  I got up and showered.   Courtney called around noon to see if I wanted to get a manicure and pedicure for my birthday.  She picked me up and we had a nice afternoon.  After she dropped me off, Colin said that he was going to Anville to meet Josh and try to get some sponsors.   I went along to hang out with Alesha and the kids.  It was such a gorgeous evening.  We hung out outside and played for a while.   We had dinner and watched a movie.   She put the kids to bed and now I'm sitting here with Alesha and am waiting for the guys to get back so we can head home.  My pain is starting to come back and I'm really uncomfortable.  Hopefully they were able to get some sponsors and they had a nice evening together.  It would be nice if this golf tournament would come together for him.  I know it's a lot of work.  I just hope it will be worth it.

Until tomorrow.  Sweet dreams and have a good night!

Thursday, June 4, 2015

Thursday 6/4/14

Yesterday was my birthday!!  I had a pretty good day.  I had an easy morning.  I got up, changed my lovely ostomy bag, took off my iv, showered, did some laundry and even did the dishes :)  My friend Brynn came over on her lunch break.  It was nice to sit down and chat with her.  She's another one of my biggest supporters!  She always knows what to say to make me feel better.

After Brynn left, I got ready for dinner.   Colin had to go in to work extra early this morning so he wasn't able to go to dinner.   My dad was out of town for work, so he missed dinner as well.  I went with mom, Amber, Shawn, Courtney, Bobby, Carter and Caden.  We had a really good time.  Even though I'm not really able to "eat" like a normal person, it was nice to sit down and have family time.

Carter refused to smile in this picture because he wanted to sit with me by himself!  I love these boys to death!!  My family means the world to me!  After dinner, my mom took me shopping for a few things.  She is determined to get me in a bathing suit and get me in the pool this summer.  We will see how that works out.  We didn't get home until almost 9:30 last night.  

As soon as I got home, I took my nighttime medicine, hooked up my TPN iv and got ready for bed.  I couldn't fall asleep to save my life.   I was still awake when Colin got up at midnight to go to work.  I didn't fall asleep until almost 4 this morning.  I was having a lot of abdominal pain and was really nauseous.   I took another dose of my nausea medicine and finally fell asleep.  I didn't wake up this morning until 11.  I got up, fed the dogs and went right back to bed because I was still really not feeling well.  Colin came home and gave me my iv fluids to put on.  I put them on and laid back down.  He finally came upstairs around 4 and made me get up and move around a little.  I took a shower and that helped, but I'm still not feeling all that well.  It's about 7 and I'm back in my pjs and am going to go back to bed.  I have such an exciting life!  

Until tomorrow.   Have a good night!

Tuesday, June 2, 2015

Tuesday 6/2

I had an iron infusion this morning.  It takes a lot out of me.  After my infusion my friend Amanda came over for a couple of hours and helped pack and organize my closet.  It was nice catching up and I really appreciated all the help!  

After she left, Colin and I showed the house again to possible tenants.  We still haven't chosen anyone yet.  We would really like to pull the trigger sand pick someone but it's been difficult.  I half wonder if it's because we really don't "want" to leave. We just know we need to and it's the best thing for our situation.  It's hard.

Sooooo......I got a package in the mail today!  

My best friend Mehgan sent me these shoes for my birthday!   I absolutely love them!
It was such a nice surprise!   Thank you Mehgan!  I love you!

This evening I took a couple of boxes of clothes to Cyndee's to start putting away my clothes.  I did a little and started to feel sick so I had to listen to my body, stop what I was doing and I headed home.  Now I'm just laying down and watching tv.  I'll probably head up to bed soon.

Until tomorrow!  Have a good night!

Monday, June 1, 2015

Monday 6/1

I can't believe it's June!!  I was abruptly waken this morning with a loud thud and lots of banging noises around 4am.  I walked down the steps to catch Wyatt red-handed in the trash and to a huge mess all over the kitchen and living room floors.  Needless to say, he was crated and so was Lilly (guilty by association).  Around 6 in the morning, there was more load noises and scratching.   Wyatt broke out of his crate.  I was NOT a happy camper.  I let Lilly out of her crate and locked them both in the bedroom with me so I could get some sleep.  (I didn't have the energy to clean up the trash at 4 in the morning so I just left it)

I woke up around 9.  I went downstairs, cleaned up the trash and fed the dogs.  I was able to take an extra long shower this morning because I was able to remove the needle from my port since the nurse was coming to replace it today. After my shower, Jeremy came over to drop off his trailer so we can use it to move.  I love Jeremy.  He is someone you can count on no matter what.  He has always been there for Colin and as time has passed, he and I have grown very close.  

Jeremy and Colin decided to move some stuff over to Cyndee's since Jeremy had off work today.  Colin wasn't home just yet so Jeremy loaded up some dressers and boxes.  When Colin got home, the two of them loaded up everything that jelly and I had packed the night before. 

While they were loading the trucks and the trailer, the nurse had come to the house to replace my needle and take my blood.  She was done around the same time as the guts.  She left and I rode with Colin over to Cyndee's do I could show them which boxes were to go where.  The unloading took about a half hour.   Jeremy went home and Colin and I headed home as well.  

That was the activity of the day.  We accomplished a lot.  I'm finally starting to feel like we are making progress.  I have been laying down since dinner and I'm headed up to bed soon.  Hopefully tomorrow will be a productive day as well.  Until then...goodnight😴